April, 30, 2025
I can’t imagine what it feels like to have your brain being taken over by disease…And there’s nothing you can do. Lewy Body disease. Those words stung and I knew it was the beginning of the end. As soon as they put my mother on a major tranquilizer/anti psychotic, I knew I was going to lose that vibrant, yes sometimes combative, personality. I had seen it in the group homes I had worked in. Zombies! They were all zombies. My mother became flat, no affect. I was starting to grieve that relationship I had once had with her. I was losing her
First day with my monstrous brace, It was bad… Bad as it could have ever been. Walking down the thin hallways I could feel the stares, hear the whispers. I was ugly, different. No One could see ME!–that underneath I was crying out, no one could comprehend the butterfly I was becoming. Under these thick metal bars, this plastic contraption, I began to sink into that dark hole. That was the day I lost myself.

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